Brothers who Battle CHD together
Half Hearts, Full of Life-Two Brothers Battling CHD Together
Zane and Zeke were both born with a Congenital Heart Disease called Hypoplastic Left Heart Syndrome. This means that they have half a heart. Having two kids with HLHS is rare. It means as a family we are guaranteed to go through six open heart surgeries (three each). At this very moment Zeke is currently inpatient in heart failure waiting for a new heart. Zane just had his Fontan (third stage) on March 9th and has been readmitted twice since. This means our family has two children inpatient at the same time, our income has plummeted while we sit bedside with our sons fighting for their lives, and try to balance life at home with our daughter Leah. We do not know what the future holds for our boys, and every single second is a blessing. Being able to capture our family as the boys grow has been the biggest blessing I could ask for. We seldom get pictures of all 5 of us and getting these pictures gives us comfort knowing we will always have the memories of our family whole because tomorrow is not promised
A NOTE FROM MARY
If you would like to Donate toward this families photo collection it would mean the world to them. Being a heart mom myself I cannot even begin to image the struggle they have yet to endure, let alone the countless nights they have had to choose what child to sit next to in a hospital room and which one is more critical and needs their attention more. How heartbreaking for these incredibly strong parents to have to do. After speaking with Kayla (the mother of these two sweetie-pies) she would love to be able to have at least one photo in her home while shes with her daughter leah, and at one in each of the boy's hospital rooms to remind her of her life with her family whole. If you would like to donate you can do so through this pay pal link. Your donation will go directly toward this families print collection and if their is any monies left they family will receive a check to help with every day living essentials during this extremely hard time.
